Notice Number: NOT-MH-06-107
Release Date: April 7, 2006
National Institute of Child Health and Human Development (NICHD), (http://www.nichd.nih.gov/)
National Institute on Drug Abuse (NIDA), (http://www.nida.nih.gov/)
National Institute on Deafness and Other Communication Disorders (NIDCD), (http://www.nidcd.nih.gov/)
National Institute of Environmental Health Sciences (NIEHS), (http://www.niehs.nih.gov/)
National Institute of Mental Health (NIMH), (http://www.nimh.nih.gov/)
National Institute of Neurological Disorders and Stroke (NINDS), (http://www.ninds.nih.gov/)
The National Database for Autism Research (NDAR) is a resource that will allow autism data to be shared among researchers and groups that are seeking to cure autism (http://ndar.nih.gov/).
The number of people diagnosed with autism has increased, and so has the need for finding its causes and cures. Autism researchers have been making great strides in the last 10 years in identifying and treating autism. Early treatment shows promising results in controlling its symptoms. Although research and treatment projects and programs have proliferated, it is often difficult to share data across programs and across approaches. By giving researchers access to more data than they can collect on their own and making their own data collection more efficiently utilized, the time to discovery can be reduced. The National Database for Autism Research will allow researchers to share their data in a collaborative environment that gives them access to data from studies others have undertaken.
The NIH has a data sharing policy in place that supports the concept of timely release and sharing of anonymized data from NIH funded studies (http://grants2.nih.gov/grants/guide/notice-files/NOT-OD-03-032.html). The NIH is seeking input from the community that will contribute to and inform NDAR regarding approaches to specific governance and policy issues. The NDAR needs to develop policies regarding data sharing, such as what data should be shared and what the timelines should be for various levels of release. Input from the potential NDAR users and contributors is sought for the following questions:
A. Timelines for sharing data:
B. Access to the database
Please send responses to NDAR@mail.nih.gov no later than May 15, 2006.
Specific questions about this Notice may be directed to:
NDAR Program Office
National Institute of Mental Health
6001 Executive Boulevard, Suite 6200, MSC 9617
Bethesda, MD 20892-9617
Weekly TOC for this Announcement
NIH Funding Opportunities and Notices
Office of Extramural
National Institutes of Health (NIH)
9000 Rockville Pike
Bethesda, Maryland 20892
Department of Health
and Human Services (HHS)
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